The awareness walk for Fibromyalgia and other invisible illnesses

The Fibromyalgia Well Spring Foundation is planning their 2016 walking tour to raise awareness for the debilitating disease.

Members of the Fibromyalgia Well Spring Foundation met at Memorial Park in Hope on Friday

The Fibromyalgia Well Spring Foundation is planning to embark on a walking tour from Langley B.C. to Banff, AB to raise awareness for the debilitating disease and other invisible illnesses of its kind on May 24th, 2016.

“Our biggest hope is to be able to get the financing to build housing for a community of people who are disabled with fibromyalgia — people who have no other reinforcements and are in desperate need of housing and moral support,” said founder Cheryl Young.

After meeting up with the cheerful and determined group at Memorial Park in Hope on Friday, April 24th, during the kick off of their campaign to raise awareness, funding and support for the collective dream of completing the 2016 national awareness tour, one thing was made clear — they were all fighters, good-humored, gracious and well adjusted individuals, despite struggling with a very difficult condition, or multiple conditions simultaneously.

The foundation’s ‘Just one more step campaign’ has started to raise money for the upcoming forty day, 1050 kilometre journey that will take the group through Aldergrove, Abbotsford, Chilliwack, Agassiz, Hope, Princeton and all the way to Banff.

Young started the foundation eight years ago as a nod to the illness that left her unable to work and feeling very much alone in the world.

“It’s been eight years since the inception of it and I wanted to start a program that would address this complex and chronic disease,” said Young. “People’s biggest hope for combatting and caring for fibromyalgia and chronic fatigue — is research.”

The disease can often appear after a traumatic incident according to Young.

“Once triggered, the pain receptors, won’t shut off in the body,” she said. Tylenol, opiates and natural supplements can be used to combat the pain, but still leave the patient in a difficult state.”

Most sufferers are women at 85 per cent in comparison to their male counterparts at 15 per cent.

“Many feel that they will never find a spouse, or partner because of it, but that’s just not true,” said Nigel Thorn, business manager with the foundation and Young’s husband. “A support group helps people realize that they are lovable and can be loved despite their condition.”

“Often people don’t understand the illness, or they think it’s not real,” Dawn Thomas, a member of the foundation and sufferer of chronic fatigue and fibromyalgia told the Hope Standard.

The group has been instrumental for Thomas in finding support as well as having a system integral to moral outreach, encouragement, education on pain management, and people who understand.

Donations are being accepted at their office in Langley at #109-20631 Fraser Hwy. Langley Mail: P.O. Box 1600, Aldergrove, B.C., V4W 2V1. For more information please contact Cheryl at 778-278-3697 or www.fibromyalgiawellspringfoundation.org.

 

 

 

Just Posted

Young Hope man with autism wants understanding, end to taunts

Brayden Duplessis, Grace 10 student at Hope Secondary, shares his story

New welding equipment for Hope Secondary

More time on welders for Hope high school students, thanks to new gear

Hope teens headed to BC Winter Games

Julius Brysch, 14, and Danielle Bacon, 13, are in Kamloops this weekend

UPDATE: 10-20 cm of snow expected Friday in Lower Mainland

Snowfall warning in effect from North Shore mountains out to Hope

Parents cross over painting job on 6 Ave. crosswalks

Crosswalks, not painted since September, are a safety concern for two parents

VIDEO: Mixed bonspiel weekend at Hope Curling Club

The all-weekend tournament is the group’s final event of the season

The way government learn someone has died is getting a digital overhaul

Governments in Canada turned to private consultants 2 years ago to offer blueprint

Bobsleigh team misses Olympic medal finish

Canadian team finishes four-man event 0.84 seconds behind first place, 0.31 seconds from podium

B.C. Games: Athletes talk Team Canada at PyeongChang 2018

From Andi Naudie to Evan McEachran there’s an Olympian for every athlete to look up to

Snowboarders sliding into fresh territory at B.C. Games

Athletes hit the slopes for first appearance as an event at the B.C. Winter Games in Kamloops

Cariboo woman raises funds for Seizure Investigation Unit beds at VGH

VGH Foundation gets VCH approval to begin fundraising for SIU beds; local efforts are paying off

Looking back at the 1979 B.C. Games: Good memories, even better jackets

39 years later, Kamloops is hosting the Winter Games again, with some volunteers returning

OLYMPICS 101: Oldest and youngest Canadians to reach the podium

This year, Canada sent its most athletes in Winter Games history, here’s a look at record breakers

BCHL Today: Cowichan Caps play spoiler and Nanaimo wins 10th straight game

BCHL Today is a (near) daily look at what’s going on around the league and the junior A world.

Most Read