This 2019 photo provided by The ALS Association shows Pat Quinn. Quinn, a co-founder of the viral ice bucket challenge, died Sunday, Nov. 22, 2020, at the age of 37. (Scott Kauffman/The ALS Association via AP)

This 2019 photo provided by The ALS Association shows Pat Quinn. Quinn, a co-founder of the viral ice bucket challenge, died Sunday, Nov. 22, 2020, at the age of 37. (Scott Kauffman/The ALS Association via AP)

Co-founder of viral ALS Ice Bucket Challenge dies at 37

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013

A co-founder of the social media ALS ice bucket challenge, which has raised more than $200 million worldwide for Lou Gehrig’s disease research, died Sunday at the age of 37, according to the ALS Association.

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013, a month after his 30th birthday, the organization said in a statement announcing his death.

“Pat fought ALS with positivity and bravery and inspired all around him,” the association said. “Those of us who knew him are devastated but grateful for all he did to advance the fight against ALS. … Our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world.”

In 2014, Quinn saw the ice bucket challenge on the social media feed of professional golfer Chris Kennedy, who first dared his wife’s cousin Jeanette Senerchia to take a bucket of ice water, dump it over her head, post a video on social media and ask others to do the same or to make a donation to charity. Senerchia’s husband had ALS.

Quinn and co-founder Pete Frates, along with their teams of supporters, helped popularize the challenge. The ALS Association said Quinn “knew it was the key to raising ALS awareness,” calling it “the greatest social media campaign in history.” Frates, a former Boston College baseball player, died in December 2019 at the age of 34.

When the two picked it up, the phenomenon exploded, the organization said. Thousands of people participated in the viral trend, including celebrities, sports stars and politicians — even Donald Trump before his election and cartoon character Homer Simpson. Online videos were viewed millions of times.

“It dramatically accelerated the fight against ALS, leading to new research discoveries, expanded care for people living with ALS, and significant investment from the government in ALS research,” the organization’s statement said.

Lou Gehrig’s disease, named after the New York Yankees great who suffered from it — is also known as ALS or motor neuron disease. It is a progressive neurodegenerative disease that leads to paralysis due to the death of motor neurons in the spinal cord and brain. There is no known cure.

The organization added that Quinn continued to raise awareness and funds after popularizing the challenge. In 2015, the association honoured him, among others, as “ALS Heroes” — an award given to people living with the disease who have had a significant positive impact on the fight against it.

On the 5th anniversary of the challenge, Quinn, who was from Yonkers, New York, addressed a crowd in Boston.

“Nobody knew the Ice Bucket Challenge would become a worldwide phenomenon, but we united as one because that is what it takes to change a disease like ALS,” he said. “There are warriors all over the world unwilling to accept it as a death sentence. … We will never stop fighting together. I will not leave this Earth until I know the next person diagnosed with ALS has a real plan to live with this disease, not just die from it.”

The Associated Press

Like us on Facebook and follow us on Twitter.

Want to support local journalism? Make a donation here.

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

(Metro Creative)
Hope residents invited to join in Earth Day clean-up event

From dead batteries to flat tires, volunteers ready to sort and recycle

Fire crews battle a large wildfire north of Highway 1 at Yale Road West on Thursday, April 15, 2021. (Jenna Hauck/ Chilliwack Progress)
PHOTOS w/ VIDEO: Large 10-hectare wildfire ‘not quite contained’ day after it started in Chilliwack

Chilliwack Fire Department completing hot-spot controls, foot patrols of area on day two

Cheam meadows trail near Mt. Cheam by Chilliwack. (Submitted)
Cheam First Nation ‘shocked’ over all-season mountain resort proposal near Chilliwack

For five years the band has been working on a gondola project of their own

Chilliwack had 130 COVID cases in the latest report from the BC Centre for Disease Control, covering the period of April 4 to 10. (BCCDC graphic)
Chilliwack COVID case count rises sharply in latest report from BC Centre for Disease Control

Just about everything west of Chilliwack is struggling badly, and we’re not doing well either

Japanese Canadian citizens being transferred into waiting trucks outside Hope Station House. NNMCC L2021-2-1-004. Photographs courtesy of the Nikkei National Museum and Cultural Centre
Fight continues for historic Hope Station House

Ombudsman report and stop work order come alongside district’s move to remove heritage status

A woman wears a protective face covering to help prevent the spread of COVID-19 as she walks past the emergency entrance of Vancouver General Hospital in Vancouver, B.C., Friday, April 9, 2021. COVID-19 cases have been on a steady increase in the province of British Columbia over the past week. THE CANADIAN PRESS/Jonathan Hayward
Top doctor warns B.C.’s daily cases could reach 3,000 as COVID hospitalizations surge

There are more than 400 people in hospital, with 125 of them in ICU

The plane blasted through an airport fence and down a hill, before stopping before a cement barrier on Highway 5A, right in front of a school bus. Photo submitted.
Student pilot crashes plane onto Highway 5A almost hitting school bus

Aircraft hit pavement right in front of school bus

Eight-year-old Piper and her family were raising money to help Guinevere, the bearded dragon, get a gynecological surgery. Sadly, the reptile didn’t survive the procedure. (Jackee Sullivan/Special to Langley Advance Times)
Lizard fails to survive surgery, GoFundMe dollars help Langley family offset medical bills

Guinevere, a pet bearded dragon, underwent an ovariectomy on Tuesday

A driver stopped by Saanich police following a road rage incident on April 15 was found to be impaired, in violation of a license restriction and in a damaged vehicle. They received a 90-day driving prohibition and a 30-day vehicle impound. (Saanich Police Traffic Safety Unit/Twitter)
Road rager fails breathalyzer on busy B.C. highway in vehicle he shouldn’t be driving

Saanich police say man was operating vehicle without required ignition lock

B.C. Premier John Horgan wears a protective face mask to help prevent the spread of COVID-19. THE CANADIAN PRESS/Jonathan Hayward
B.C. Premier John Horgan booked to get AstraZeneca shot Friday

‘Let’s show all British Columbians that the best vaccine is the one that’s available to you now,’ he said

Doses of the Moderna COVID‑19 vaccine in a freezer trailer, to be transported to Canada during the COVID-19 pandemic. THE CANADIAN PRESS/Nathan Denette
Pfizer to increase vaccine deliveries in Canada as Moderna supply slashed

Moderna plans to ship 650,000 doses of its vaccine to Canada by the end of the month, instead of the expected 1.2 million

Dr. Bonnie Henry speaks about the province’s COVID-19 vaccine plans during a news conference at the legislature in Victoria. THE CANADIAN PRESS/Chad Hipolito
P.1 variant likely highest in B.C. due to more testing for it: Dr. Henry

Overall, just under 60% of new daily cases in the province involve variants

The father of Aaliyah Rosa planted a tree and laid a plaque in her memory in 2018. (Langley Advance Times files)
Final witness will extend Langley child murder trial into May or June

Lengthy trial began last autumn with COVID and other factors forcing it to take longer than expected

A crossing guard stops traffic as students wearing face masks to curb the spread of COVID-19 arrive at Ecole Woodward Hill Elementary School, in Surrey, B.C., on Tuesday, February 23, 2021. A number of schools in the Fraser Health region, including Woodward Hill, have reported cases of the B.1.7.7 COVID-19 variant first detected in the U.K. THE CANADIAN PRESS/Darryl Dyck
COVID-infected students in Lower Mainland schools transmitting to 1 to 2 others: data

Eight to 13 per cent of COVID cases among students in the Lower Mainland were acquired in schools, B.C. says

Most Read