Pandemic restricting access to services for children with complex medical issues: UBC study

Parents of children with complex medical reduced their access to hospitals and schools

Black Press Media file photo

Black Press Media file photo

Families with children who have extremely complex or chronic medical conditions are struggling to find adequate support, according to the latest research by the UBC.

Children with chronic medical conditions have lost access to key services like physiotherapy or speech and language therapy, the August study found.

Physicians describe medically complex children as those who are born or become seriously ill soon after birth. They often require feeding tubes and ventilators, and are likely to be non-verbal. These children need care throughout their lives and require multiple specialists.

Research suggests that 30 per cent of the children’s parents avoided taking them to the emergency room in circumstances where they would normally have done so. From March until May, 60 per cent of the surveyed children stopped attending school. Parents were concerned over what their child might be exposed to.

The B.C. Ministry of Children and Family Development typically provides all medical equipment for children with a chronic illness. The ministry also provides co-payments for therapies, extra care to ensure the child’s parent can have a break, and allows support payments for licenced daycares.

Thirty-eight per cent of children’s parents were not able to access ministry supports to offset the impact of COVID-19 restrictions.

“The most surprising detail was from the B.C. ministry – most parents didn’t know about their support networks, or couldn’t access them even though they were advertised as key supports,” said lead researcher Jennifer Baumbusch.

“This had a huge impact on the parents’ physical and mental health.”


@janelle_swift
janelle.swift@castlegarnews.com

Like us on Facebook and follow us on Twitter.

Coronavirus

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Those who walk by the welcome figure often touch hands with it. (Screenshot/Jessica Poirier)
‘A presence in the school’: The story behind Hope Secondary’s welcome figure

After a year’s worth of delays due to COVID, the welcome figure… Continue reading

Environment Canada says the Eastern Fraser Valley will enjoy plenty of sunshine this week. (Black Press News File)
Sunny weather to stay around all week in Eastern Fraser Valley

Chilliwack, Abbotsford and Hope all forecasted for a week free of rainfall

Chilliwack school trustee Barry Neufeld has called for the resignation of B.C.’s Minister of Education, Jennifer Whiteside. He made the call during a speech in Vancouver on April 10, 2021, in a rally for a parent embroiled in legal battles surrounding his child’s transition.
Chilliwack school trustee calls for B.C.’s minister of education to resign

Barry Neufeld spoke at rally for jailed father in Vancouver, calling SOGI 123 a ‘dangerous experiment’

Two-year-old Ivy McLeod, seen here on April 9, 2021 with four-year-old sister Elena and mom Vanessa, was born with limb differences. The family, including husband/dad Sean McLeod, is looking for a family puppy that also has a limb difference. (Jenna Hauck/ Chilliwack Progress)
Chilliwack family looking for puppy with limb difference, just like 2-year-old Ivy

Ivy McLeod born as bilateral amputee, now her family wants to find ‘companion’ puppy for her

B.C. Health Minister Adrian Dix and Premier John Horgan describe vaccine rollout at the legislature, March 29, 2021. (B.C. government)
1,262 more COVID-19 infections in B.C. Friday, 9,574 active cases

Province’s mass vaccination reaches one million people

People walk past the Olympic rings in Whistler, B.C., Friday, May 15, 2020. Whistler which is a travel destination for tourists around the world is seeing the effects of travel bans due to COVID-19. THE CANADIAN PRESS/Jonathan Hayward
Adults living, working in Whistler, B.C., eligible for COVID-19 vaccine on Monday

The move comes as the province deals with a rush of COVID-19 and variant cases in the community

RCMP crest. (Black Press Media files)
UPDATE: RCMP investigating after child, 6, dies at motel in Duncan, B.C.

The BC Coroners Service is conducting its own investigation into the circumstances around the child’s death

RCMP display some of the fish seized from three suspects who pleaded guilty to violating the Fisheries Act in 2019, in this undated handout photo. THE CANADIAN PRESS/HO - RCMP
3 banned from fishing, holding licences after overfishing violations near Vancouver Island

Mounties seized the group’s 30-foot fishing vessel and all equipment on board at the time

B.C. Premier John Horgan responds to questions during a postelection news conference in Vancouver, on Sunday, October 25, 2020. British Columbia’s opposition Liberals and Greens acknowledge the COVID-19 pandemic has presented huge challenges for Horgan’s government, but they say Monday’s throne speech must outline a coherent plan for the province’s economic, health, social and environmental future. THE CANADIAN PRESS/Darryl Dyck
Horgan’s NDP to bring in throne speech in B.C., Opposition wants coherent plan

Farnworth said the budget will include details of government investment in communities and infrastructure

FILE - An arena worker removes the net from the ice after the Vancouver Canucks and Calgary Flames NHL hockey game was postponed due to a positive COVID-19 test result, in Vancouver, British Columbia, in this Wednesday, March 31, 2021, file photo. As vaccinations ramp up past a pace of 3 million a day in the U.S, the NHL is in a tougher spot than the other three major North American professional sports leagues because seven of 31 teams are based on Canada. (Darryl Dyck/The Canadian Press via AP, File)
Vancouver Canucks scheduled to practice Sunday, resume games April 16 after COVID outbreak

Canucks outbreak delayed the team’s season by eight games

Emergency crews on scene after a small plane crashed in a grassy area on the northeast side of Boundary Bay Airport Saturday morning (April 10). A freelancer said the plane caught fire and one person was transported to hospital by BC Emergency Health Services. (Photo: Shane MacKichan)
1 taken to hospital after plane crash at Metro Vancouver airport

Plane appears to have suffered ‘significant’ damage, says freelancer

Most Read